Friday, June 24, 2011

Here and There


Summertime Leisure




"I am not texting!" she said indignantly.


 VBS for the first time for Wade!



But growing up is hard work.  At nap time, he just couldn't seem to wake up!

Sleeping in bed.....


sleeping on Randall.....


sleeping on the love seat....


sleeping on the couch.....

How does a fella wake up?


Maybe you do it one eye at a time.



Randall catches some air.


 Christopher comes in for a landing.



"Oh well, I'll just patch it myself," he said.
So he did.



Wade operates heavy equipment.


Mmmm!  Sweet corn!


Who's that in my house?


Up close and personal, he really was kind of cute.


Trip to Ohio where the weather was lovely...


...the strawberries were blooming...




...the raspberries were flourishing (red, purple, and yellow!)


...the mint tea patch was lush...


...the cousins were exuberant...

 

...the wind was made for kites....




...the grape arbor was absolutely charming...


...and the doughnuts were yummy!


Aunt Betty is Christopher's friend for life.
Never underestimate what a doughnut can do.



Sunday, June 05, 2011

How Flexible Are You?




Wade's amazing ability to flex with ease has always astounded me.  He's just shy of being one of those people who can sit on their own heads.

And even while we know it is caused by the thing called hypotonia, we're still a little jealous because all we can sit on are other people's heads.

But even though we ordinary people may be limited in our physical range of motion, we still have the potential to learn how to flex in other areas of life.  Scientists have only scratched the surface in their understanding of  the plasticity of the brain and its potential to change and adapt to its circumstances.

Recently, I read a book entitled The Brain That Changes Itself  by Norman Droidge.  This book was fascinating in its stories of the amazing adaptability of the brain which, when injured, is able to allocate adjacent brain matter to take over for the damaged part.  Detailed in the book are the works of dedicated scientists and researchers who are developing programs which exercise the brain in specific ways to enhance performance in damaged areas.

Especially interesting was the story of the first doctor to perform the amputation of a phantom limb, which he did by the use of illusion!  Simply by employing a trick of the mind, the phantom limb no longer itched where it couldn't be scratched.  No drugs involved; no side effects.

The exciting thing about some of these new possibilities is the hope that exists for the restoration and maintenance of brain function not only for those with brain injuries, but also for those of us (everyone) who will lose valuable brain reflex and capacity as we age.

As we learn to flex our brains when we are young, we provide better pathways for adaptability when we are old.  

So don't fight against having to learn new things, walk new roads, and map unfamiliar territory.  It's all part of developing those brainy washboard abs.



Another item of interest involved the rehabilitation of stroke victims.  Insurance companies usually only provide rehab for a certain number of weeks because after that point, the patients seem to plateau and fail to make any more progress.  But current research shows that during the weeks when the patients' achievements appear to have leveled off, the brain is, indeed, still busy working behind the scenes sorting everything out and making the new connections that are needed to support the further transformations that will take place.

It is in the pausing, that the long-term learning takes place.

I like that thought.  Wade has provided me with many opportunities the past four years to pause and think---thoughts about learning and love, about beauty and simplicity, about embracing change and welcoming flexibility.  And there is really no rocket science involved.

But now I know that simple steps can be made simpler.

And I must be more patient to teach than eager to test.

And different is interesting, not frightening.

And the world is friendlier than I thought.

And loving someone unconditionally doesn't eliminate the need to train and to guide.

And there is a network of intertwining lives, past and present, that have provided a rich world for Wade to live in with possibilities that have never been better.

And I realize that the least of these really aren't least at all.

And I know that trying to explain all this is like picking apart the wings of a butterfly--the loveliness I see in my mind only looks awkward and tattered when I try to dissect it.

Because love still can't be explained.  Not at all, not by the most brilliant brain imaging.

And God can't be explained either, but He is closer and I thank Him daily for giving me the opportunity to flex where it matters.

Because in turning my world upside down, He helped me know which way is up.

Come to think of it,  when it comes to mental gymnastics, I might actually be sitting on my own head.


Saturday, May 28, 2011

The Performer



Wade finished his second year of Bible Play School last week with a flourish.   For the program, his class were all fish; Wade is the little blue fish who spots Daddy in the balcony!

Monday, May 16, 2011

Somehow Or Other.......


......it's summer!

The end-of-the-year program and picnic were Saturday.  By this morning, Randall was already talking about something that happened back when he was in sixth grade.

And I sent Christopher to wash his hands for supper and he forgot and brushed his teeth instead.

And Wade has some new and enlightening phrases.

Great idea!
What in the world!
Mom!  Recycle!

And then he has mumblings which no one can understand but which Christopher interprets anyway.  "He said Randall was King of the Nose Hole and that I am The Greatest Person Who Ever Lived Except for God and Jesus."
 

And as for the bird......he was fluttering around inside the wall of our bedroom closet.

I believe it's going to be an interesting summer.




Sunday, May 08, 2011

Notes of Interest Found Behind the Dresser



The #1 Boy's Hut

We, the members of the #1 Boy's Hut, in order to form a more Godly hut promise to:

--try not to get in fights

--try not to kick members out of the hut

--try not to tease anybody

Signed___________________


Test

 1.  What would you do if you saw some people that were not members of the hut that were tearing down the hut?  (Ask them nicely to go away.)

 2.  What would you do if you started to get in a fight with someone?  (stop fighting and go find either Randy or Randall)


 3.  What would you do if a person started acting really snobbish? (Hold a meeting with the other members and decide what to do.)


 4.  Should we have a president or a very high-positioned person?

 5.  How many members should there be in the hut?

 6.  Should we move the hut?

 7.  Should we make the hut bigger?

 8.  Should we have a hut and a club, just a hut, or just a club?

 9.  What do you think we should name the hut?

10.  Will you follow the rules?


And last of all is my personal favorite.....


11..  The girl's hut is right beside our hut.  Do you think we should fight the girls?


Oh yes, I love housecleaning, finding things behind dressers, living in a house of boys.

Wednesday, April 27, 2011

How to Do Everything You Never Thought of Doing



How to trike safely


How to text with a calculator


How to be environmentally green:  take waterless baths


How to eliminate red eye in photos


How to be a social sleeper


How to sleep strangely


How to hide in your brother's bed at bedtime
(Mom will never find me here!)


How to turn innocent Easter eggs....


......into bullets


How to grow fast crystals....


....while still in your p.j.'s


How to look all cool and hunk-y while still in your p.j.'s


How to imitate a picture.....


(....or is it like this?)


How to write sentences that  alarm psychiatrists


How to drown a drinking bird
(Sorry, Peta, but he just won't take his head out of the water.)


How to sing for an audience


(I wonder why she's not more impressed.)


How to rearrange a manger scene


How to have a good day....


....every day!


Sunday, April 24, 2011

A Day of Joy


....a day of Love....

Happy Easter!

Tuesday, April 19, 2011

Bringing Up Boys


Bible question:  What could you do for someone today to encourage them?

Randall's answer:  I could encourage Christopher to stop arguing with me.



But if he keeps arguing, you just make his head disappear.



It really works; no voodoo involved!  Just a mirror trick.


Randall, encouraging Christopher to be agreeable.
Wade, being agreeable.


Sanitary kissing?


Frisky--while he lasted.
It's a good thing we're a little better at bringing up boys than we are at bringing up pets.


Every boy needs a talk with Grandma.


The rain has a song if you know how to listen.



Or.....you could just try listening to your foot instead.


Boys will be.......
......girls.


When a boy is tired....any place will do.


Monday, April 11, 2011

Learning a New Language




It is all too easy to take language, one's own language, for granted---one may need to encounter another language, or rather another mode of language, in order to be astonished, to be pushed into wonder, again.
                                                                             --Oliver Sacks (Seeing Voices)

Sometimes it takes a jolt to wake us up and make us see the ordinary in a new way.

At other times, life surprises us sufficiently to allow us to see beyond the ordinary--to explore ideas, concepts and beauty that were previously invisible.  It is like seeing new colors, speaking a new language, or entertaining a stranger from another planet.

In the words of William Channing, I find myself creating a new symphony, allowing "the spiritual, unbidden and unconscious, to grow up through the common".

When Wade was born with Down syndrome, I looked at his slanted eyes and felt, strangely, that I had given birth to someone who was not my own.  Would we, I wondered, always feel that he was an alien who had happened to land in our family?

Now, 4 1/2 years later, I can look back and laugh (or shudder) at my narrow perception of the power of love.  For our stranger, the alien, is perfectly comfortable in this family and in this world.  In fact, with open hands he reaches out to a world in which he knows no stranger.  Shopping trips, family excursions, and doctor's appointments all become new experiences when Wade is with me.

I would be most comfortable sitting in my corner of the waiting room quietly reading a book, or zipping through the grocery store like a zealot on a dietary mission.  But Wade waves and says a cheerful, "Hello!" to the other shoppers; he bends over and lovingly pats the hair of the baby in the waiting room; he politely says, " 'Scuse, me!" to the cleaning lady in the thrift store.

Amazingly to me, they all respond with smiles and kind words offered back to the alien, my son.  And then the cleaning lady and I enjoy a laugh together. The mom in the waiting room shares parenting tips with me.  The grocery store becomes a place for adventures in human nature on Aisles 4, 5, and 6.

And everyday I am learning more words in this new language, my symphony.

It's all so very beautiful that I wish I had some way of describing these brilliant new colors, this pure, sweet music, this lovely lilting language.

But yesterday I read an article in the Boston Globe written by a grandmother who is also learning from an alien.  And she described it all so well.    It's called "Right Planet, Right Child".

Oh yes!


Saturday, April 02, 2011

Just Where Is That Giraffe?


Cecily G the Giraffe helps Wade learn prepositions.