Friday, November 20, 2009
Wade started a new era this fall when he graduated from the Babies Can't Wait program at age three.
He now gets an educator from the public school system who comes out once a week to work with him. He loves play time with Miss Motley.
We also enrolled him in a Bible play school two days a week where he is in a class of eight typical children who, we hope, will further inspire his verbal language skills. He gets speech, OT, and PT during the days he is there.
The second day of play school, he played hooky to attend college. We took him in for a clinical correlation with a class of first-year medical students who were studying Down Syndrome. It was an interesting day for us all.
This fall, we found a music therapist who is just getting established locally. He offered to come to our support group and do a free demo session with the children. That was a fun evening and Wade was happy to participate in the music!
Saturday, October 03, 2009
Thursday, August 27, 2009
Friday, July 31, 2009
No more injections! Wade did not need the third set of injections….hurrah!
He will need to continue wearing the glove and will have periodic check-ups to make sure the scar tissue doesn't start to harden again.
He throws a ball over seven feet now (documented by the PT today) and continues to work on jumping.
Speech is coming slowly; he tries so hard that sometimes it can be quite funny. But every week I see improvement.
He is very proud to have jobs to do: setting the table, emptying trash, putting clothes away, climbing out of bed (with those flexible legs) and waking us all up in the morning.
Sometimes he even needs to multitask like the rest of us.
Monday, June 22, 2009
Monday, May 25, 2009
Sunday, May 17, 2009
Wade had more injections Tuesday which went well. The Doctor was pleased with how his hand looks so far and thought he might not need the third set. We will, however, have to schedule the injections anyway in six weeks and go in (at 6:00 in the morning, no food after midnight) as if he were going to have them. Then the doctor will evaluate after we get in there and hopefully send us back home.
Wednesday, April 29, 2009
Wade started with a new speech therapist today. He is eager to begin speaking Big People language.
For a while he was stuck on the letter B; now he loves the K sound. He tries to work it into his conversations as many times as he can. With a bit of a guttural flair, he sounds as if he's speaking German.
Of course, at this point his English is still quite a bit better than his German or French.
He astonished me last night though. He was poking the letters out of his foam alphabet puzzle. I noticed when he came to the letter U that he signed umbrella before he poked it out. Intrigued, I wondered how many of the other letters he could recognize without any visual or verbal prompts from me. As I held up the letters he either said the sound or signed a word that started with the letter for 13 out of the 26 letters of the alphabet. I was so excited I could hardly cook supper.
I give great credit to http://www.starfall.com/. We have been using that for a long time with him and the last few months I've been doing 30 minutes of it per day with him. It's a great online learning to read program with a kindergarten curriculum coming out this fall.
Tuesday, March 24, 2009
The Gloved One ready for Kenalog injections
Coloring out the frustrations of a long wait
At last, ready to go
After waking back up, not feeling so great
Home again, food at last!
Wade has been wearing a Jobst glove to help counteract the scar tissue from his burn, which has thickened on the top of his palm and on his third finger. Today he also had steroid injections done which will help to start breaking up the scar tissue. He will likely have the injections done three times, six weeks apart. He was sedated for the procedure because the injections need to be placed very precisely and are painful.
Tuesday, March 10, 2009
"And a partridge in a bear tree," Christopher sang.
"No, Christopher," said Randall, the official Little Brother Corrector, "it's a partridge in a pantry."
(They must be closely related to the person who once asked my mom, "What in the world is a partridge junipear tree?")
Monday, March 02, 2009
Tuesday, February 24, 2009
Wade's only verbal sentence at this point is "I did it" which he says delightedly no matter how incriminating it may be. Here are some of the things he has been doing, for better or for worse.
Sunday, February 08, 2009
Wade continues to thrive at his own pace. His accomplishments are full of joy for us as well as for him.
He is now getting therapy two or three days a week. Speech and occupational are every week and physical is every other week at this time.
When Jesse moved away in August, Laurie became his new OT.
Wade is always sociable and unafraid of strangers, but I could tell that he was unsettled during the transition until a routine was established with the new OT.
He can now walk without support up and down the little stairs Nevin built for him.
He is learning to jump, but still locks his knees most of the time because it makes him feel safer that way. But it's very difficult and jarring to jump with locked knees. Try it sometime.
He does a great job with shape sorting and simple wooden puzzles.
He is learning to string beads.
He is trying very hard to learn to take lids off. (Hmmm. Is that a good thing to encourage at this point?)
Another scary thought is that he almost can work doorknobs properly.
His speech is progressing slowly. He voluntarily puts two signs together to make two-word sentences. He signs, "Eat sandwich" and "More cracker".
He is also getting much better at saying different sounds and some recognizable words. Just this week he said very clearly multiple times the words nice, ice, night,and light.
Before this he would sometimes come out with a new perfect word now and then, but not be able to repeat it consistently.
Mostly he loves words beginning with B and if he can't figure it out any other way to say a word, he thinks the word Bap should express it all.
He has had several colds along with croup and a sinus infection this winter. As a result, he learned to blow his nose nicely. (There's always an upside!)
And in October he learned what hot means the hard way when he touched our glass fireplace door and got second degree burns on the palm, fingers, and thumb of his right hand.
I never wanted to have an acquaintance with the burn unit other than to provide meals occasionally. But that's where we got sent for some temporary skin grafting.
His burn has healed nicely, but I am still massaging it with lotion every day to help the skin renew itself without scarring.