Monday, April 30, 2012

Bionic Boy

Dinosaur eggs...

and a Purple Dinosaur Bridge...

and the Sleeping Green Monster...
What could be next?

Um....this is starting to look ominous.

Oh, no!  They turned him into a robot!

And then they said, "Good night!  Sweet dreams!"

The American Academy of Pediatrics now recommends that all children with Down syndrome have a sleep study done by the time they are 4 years old.  So Wade had his done Friday night.  How you can have that many wires coming from your head, face, legs, chest, and big toe and still have anything that resembles a night of sleep is a wonder to me!

But he did!  

Daddy stayed all night with him and said he was sleeping within 10 minutes of crawling into bed.  

Now we are waiting on the results.  Apparently, a rather high percentage of children with Down syndrome have problems with sleep apnea.  We have questions about the quality of Wade's sleep at times.  He goes to sleep quickly but then sometimes tends to wander out of bed and fall asleep again instantly in odd places.  Why does he get out of bed when he's obviously still very tired?  We don't know.

Monday, April 16, 2012

A Perfect World

I dislike intensely the politics of most groups, secular and religious alike, when it comes to issues like abortion.  Behind the name calling and finger pointing of both sides, somehow in the heat of the argument, we seem to quickly degenerate into the land of the inhumane.  And no one benefits from that.

So, most of the time, I would rather allow this blog to be simply the story of what one family is learning, existing for those who will find it when they need it the most.


....there are times when I feel the urgency of a message that must be heard because it is not only the message of an extra chromosome, but is also the heartfelt cry of us all.

Please don't destroy me because I am not like you.

This week Kurt Kondrich has written a thoughtful article entitled "Eugenics as a Human Right?"  As you read it, can you help but ask yourself, "When will they come for me?"

In the meantime, while you're thinking, take a detour over here "In Honor of Carissa" and just for a moment allow yourself to imagine: What if everyone thought like Carissa?  Would the world be more, or less, perfect?