Friday, November 21, 2008

Times Square Video

Three months ago I posted about Wade appearing in a video that was shown in Times Square to kick off Down Syndrome Awareness month.

It is now available to view online. Go here and see if you can spot Wade.

Saturday, November 15, 2008

Bernadette Resha (and husband)


At the Conference we attended we were privileged to meet Bernadette Resha & her husband, Josh Putman. They both have Down Syndrome and were celebrating their 1st wedding anniversary..

Their story is interesting and can be found in this article that appeared in the Tennessean.

Bernadette is an accomplished painter and had some of her portfolio available for purchase at the convention.

In addition to being an artist, she is also a violinist, model, public spokesperson, and has appeared on television and in film. In 1994 she was Special Olympic's Athlete of the year both locally and for the State of Tennessee. The Easter Seal Society made Bernadette its 2000 Adult Representative and the same year she started a career as an artist.

Wednesday, November 12, 2008

Down Syndrome Conference

Last weekend Karen & I attended the "2008 Regional Conference on Down Syndrome and other Disabilities" in Atlanta. Many thanks to the Down Syndrome Association of Atlanta for planning & hosting this event. Thanks also to grandparents and my sister, Karen, for taking care of our 3 boys to make it possible for us to go.

We had a great time and got to sit in on a lot of interesting and educational presentations & workshops.

The first day there were several presentations by Dr. Brian G Skotko, co-author of Common Threads.
Dr. Skotko has a sister with Down Syndrome. He is a resident physician at Children's Hospital Boston and Boston Medical Center. He has dedicated his professional energies toward children with cognitive and development disabilities.
Coincidentally, about a week before this conference we received some survey forms in the mail from Dr. Skotko asking us to participate in a research study he is conducting on Down Syndrome families. He is especially interested in how it affects other siblings in the family. Randall even got to fill out his own survey.

“What the Other Children Are Thinking”
is a research paper Dr. Skotko co-wrote that appeared in the American Journal of Medical Genetics.

In the coming days I will try to do some more posts telling of some of the other people we got to meet.