Wednesday, April 27, 2011

How to Do Everything You Never Thought of Doing



How to trike safely


How to text with a calculator


How to be environmentally green:  take waterless baths


How to eliminate red eye in photos


How to be a social sleeper


How to sleep strangely


How to hide in your brother's bed at bedtime
(Mom will never find me here!)


How to turn innocent Easter eggs....


......into bullets


How to grow fast crystals....


....while still in your p.j.'s


How to look all cool and hunk-y while still in your p.j.'s


How to imitate a picture.....


(....or is it like this?)


How to write sentences that  alarm psychiatrists


How to drown a drinking bird
(Sorry, Peta, but he just won't take his head out of the water.)


How to sing for an audience


(I wonder why she's not more impressed.)


How to rearrange a manger scene


How to have a good day....


....every day!


Sunday, April 24, 2011

A Day of Joy


....a day of Love....

Happy Easter!

Tuesday, April 19, 2011

Bringing Up Boys


Bible question:  What could you do for someone today to encourage them?

Randall's answer:  I could encourage Christopher to stop arguing with me.



But if he keeps arguing, you just make his head disappear.



It really works; no voodoo involved!  Just a mirror trick.


Randall, encouraging Christopher to be agreeable.
Wade, being agreeable.


Sanitary kissing?


Frisky--while he lasted.
It's a good thing we're a little better at bringing up boys than we are at bringing up pets.


Every boy needs a talk with Grandma.


The rain has a song if you know how to listen.



Or.....you could just try listening to your foot instead.


Boys will be.......
......girls.


When a boy is tired....any place will do.


Monday, April 11, 2011

Learning a New Language




It is all too easy to take language, one's own language, for granted---one may need to encounter another language, or rather another mode of language, in order to be astonished, to be pushed into wonder, again.
                                                                             --Oliver Sacks (Seeing Voices)

Sometimes it takes a jolt to wake us up and make us see the ordinary in a new way.

At other times, life surprises us sufficiently to allow us to see beyond the ordinary--to explore ideas, concepts and beauty that were previously invisible.  It is like seeing new colors, speaking a new language, or entertaining a stranger from another planet.

In the words of William Channing, I find myself creating a new symphony, allowing "the spiritual, unbidden and unconscious, to grow up through the common".

When Wade was born with Down syndrome, I looked at his slanted eyes and felt, strangely, that I had given birth to someone who was not my own.  Would we, I wondered, always feel that he was an alien who had happened to land in our family?

Now, 4 1/2 years later, I can look back and laugh (or shudder) at my narrow perception of the power of love.  For our stranger, the alien, is perfectly comfortable in this family and in this world.  In fact, with open hands he reaches out to a world in which he knows no stranger.  Shopping trips, family excursions, and doctor's appointments all become new experiences when Wade is with me.

I would be most comfortable sitting in my corner of the waiting room quietly reading a book, or zipping through the grocery store like a zealot on a dietary mission.  But Wade waves and says a cheerful, "Hello!" to the other shoppers; he bends over and lovingly pats the hair of the baby in the waiting room; he politely says, " 'Scuse, me!" to the cleaning lady in the thrift store.

Amazingly to me, they all respond with smiles and kind words offered back to the alien, my son.  And then the cleaning lady and I enjoy a laugh together. The mom in the waiting room shares parenting tips with me.  The grocery store becomes a place for adventures in human nature on Aisles 4, 5, and 6.

And everyday I am learning more words in this new language, my symphony.

It's all so very beautiful that I wish I had some way of describing these brilliant new colors, this pure, sweet music, this lovely lilting language.

But yesterday I read an article in the Boston Globe written by a grandmother who is also learning from an alien.  And she described it all so well.    It's called "Right Planet, Right Child".

Oh yes!


Saturday, April 02, 2011

Just Where Is That Giraffe?


Cecily G the Giraffe helps Wade learn prepositions.





Monday, March 21, 2011

World Down Syndrome Day



Today is March 21, World Down Syndrome Day.

From the International Down Syndrome Coalition for Life comes this wonderful video which includes a picture of Wade.

As you watch it, celebrate Life with us!

Whoever welcomes one of these little children in My name welcomes Me.    Mark 9:36

Sunday, March 13, 2011

Great Expectations



"But why," said Randall, completely bewildered, "why would anyone want to cure Down syndrome?"

At one of our last support group meetings, the discussion touched on the possibilities of current scientific research which will be able to map out that extra chromosome and its blueprint for our children. 

"Who knows!" said Chris, "I might be the one to figure it out, just like Randall might be the one who discovers the cure for cancer!"

Four years ago, I may have been more excited about such possibilities.  Today, however, I find myself lagging in enthusiasm when it comes to "cure-all" remedies for my son with that lovely extra chromosome.

For, hand-in-hand with the idea that he needs to be "cured" comes the ominous medical breakthrough of a non-invasive
prenatal blood test
which will diagnose Down syndrome with deadly accuracy.

Deadly, because there is a demon lurking behind this medical "advancement"---a demon who peers out behind the words of a researcher from the Institute of Neurology and Genetics in Nicosia.

"The cheaper and quicker method of blood sampling rather than collecting fluid from the womb will encourage more couples to take the test and therefore slowly eradicate the disease. There is no cure, so this is a test for couples who want to know and prevent it.  It...can identify Down syndrome in the 11th week of pregnancy, early enough for a woman to end her pregnancy if she chooses."
---Philippos Patsalis

I don't know you, Philippos, but I'm sad that you choose to label Down syndrome as a disease that needs to be cured.  And I pray that somehow, somewhere, someone with Down syndrome will find you and love you until you know, as I do, that, indeed, there is no cure needed for this wonderful anomaly that makes our world beautiful.

For, wonderful though it may seem to be the Potential Mother of Future Scientists Who Discover Great Cures, I find it more wonderful still to be the mother of a little boy who, like nearly all others in his family of 47 chromosomes, has been given the cure for Hatred.

Great would be the scientist who could isolate the gene for loving others the way they should be loved.

And that, Philippos, would be the cure we all need.



If Down syndrome is a disease then the world needs to catch the symptoms and spread them quickly — unconditional love, purity, innocence, honesty, and an incorruptible spirit of Light!  ---Kurt Kondrich, (dad of Chloe, age 7, who belongs to the race that knows Love)



Friday, March 04, 2011

Yeah, Right...


Angry Birds promo cover.png

"But, Mom," Randall protests, "Angry Birds is beneficial. It helps to develop eye/hand coordination."

(Sorry, Randall, I don't think it was written into your OT goals. Too bad.)

Sunday, February 27, 2011

A Week with Wade: Sunday



Wade is delighted to go to church on Sunday!


He started going to Sunday School in September and loves his teacher Diana.


Wade has a verse to learn for Sunday School each week as well as a verse for Bible Play School.  He can read the verses, so I make copies each week for him to practice both here at home and in therapy.  We put all the old verses in an album and continue to read them for extra practice.  


He has not been able to say any of  the verses by memory though until this week.  As if he knew I was blogging about him this week, he chose to say his Bible verse from memory for the first time!  That's a huge milestone!


It's been a good week and we're ready to start another one!

Saturday, February 26, 2011

A Week with Wade: Saturday


Saturdays are music therapy time with David.  Wade loves Saturdays and David and music.


The Hello Song


He's got rhythm!


When Nevin runs the sound systems for various events, he's always complaining that people don't get close enough to the mic. Do you think Wade is close enough to his mic?


Parachute time--can you shake it up and down and walk in a circle at the same time?


David started Wade on the piano in the fall.  The notes of the song are printed in color and there are corresponding colored stickers on the keys.  He has also now learned which fingers to use on what keys.  I have been amazed at his capabilities on the piano and have to thank David for keeping my expectations high enough.


Wade also plays the same song on colored hand bells, using the correct fingers.  The ring finger is a difficult one.


The rest of today we spent with more Beloved People, celebrating Grandma Evelyn's birthday with a picnic.


A birthday party wouldn't be complete without Grandpa.


And then there were more Beloved Aunts and Uncles...


and cousins.....


.....and cousins......


.......and more cousins!


And what about a grubby little boy kiss for a sweet girl.  Awwwww!



The weather was perfect, the turtles were charming, and the alligator tried to ignore us.

We wish Grandma had birthdays more often.