Thursday, October 31, 2013

How Do You Get to West Egg Village?

In Fitzgerald's classic novel, The Great Gatsby, the protagonist Nick Carraway had recently moved from the Midwest to a fictional village in New York.  As anyone might after such a move, Nick felt a bit alone at first until someone stopped him on the road one day to ask a question.
"How do you get to West Egg Village?" he asked helplessly.
I told him.  And as I walked on I was lonely no longer.  I was a guide, a pathfinder, an original settler.  He had casually conferred on me the freedom of the neighborhood.
In ordinary life, the purpose of questions is to receive help.  But in Nick's case, the question not only provided help for the one asking, but also for the one answering the question.

Most of us arrived in the land of Trisomy 21 with dozens of questions and no answers.  We felt alone.  And frightened.

But as we forged a way, we found others who could help us answer our questions. During the journey, we grew and changed and eventually learned that even we could begin to answer some simple questions for someone else.

And we felt alone no longer.

The best thing, then, about "31 for 21" is that in explaining a few answers to someone else, we are, like Nick, conferred the freedom of neighborhood in a much broader sense than otherwise possible.

Our family belongs to a small Mennonite church.  From the beginning of our journey, the people of our community have listened as we have learned.  They have traveled with us, not because they had to, but because they wanted to, not because they were governed by some constitutional law of equality or by some institutional regulation of the church, but because they were governed by the enduring principles for unconditional love which God has given to us all.

Sometimes I feel an uneasy guilt to be surrounded by so much support while we hear of others who are truly alone.  We are aware that because of the integrity of the people who surround us, we have been cushioned from many of the blows others must take.

And so, every year when October comes, I wish in a small way to broaden the scope of understanding beyond our community.  With the advantages of modern technology, neighborhood need no longer be confined to those in our physical location.  And I hope that by sharing the things we are learning, a greater sense of neighborhood will be conveyed not only to those families with Trisomy 21, but also to those without.

It is, I think, not too far beyond the realms of possibility to dream that once again sharing the way to West Egg Village will be beneficial both to the stranger and to the villager.


Wings Love said...
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Candace said...

HI! I couldn't find a link to email you directly so I thought I'd try to contact you through the comments!
My name is Candace Chatman and I am a graduate student receiving my Masters in Occupational Therapy at California State University, Dominguez Hills. My colleagues and I, Haley Arnold and Cassie Duwe, are conducting a quantitative research study measuring the quality of life and stress among caregivers of individuals of Down syndrome.

We are reaching out to you to see if you'd be willing to share our survey link with your readers. Participants will complete our online survey that will take approximately fifteen minutes and all responses will remain confidential. Criteria to participate in this survey require the caregiver to be 18 years of age or older and caring for a family member with Down syndrome, have access to both a computer and the Internet, and comprehend English.

Thank you in advance for considering distributing our survey to your clients! Please let me know if you have any questions.

If you're not willing to share the link to our survey, please consider completing the survey yourself. Your spouse can also complete the survey!
Candace Chatman

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